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Consortium for the Exploitation of Longitudinal Administrative Databases

Brief description

This project was unquestionably the most complex of those the QPHR Network has been dealing with because of multiple institutional actors involved (multiple leadership of the MSSS and other Ministries, Regional Health Agencies and Social Services, Departments of Public Health, National Institute of Public Health, Régie de l'assurance maladie du Québec, Institut de la statistique du Québec, Health Commissioner, Commission on Access to Information), demonstration projects outstanding (IRIS EPSEBE, CMIS, etc.). The many researchers and research networks interested in it and because of legal and ethical constraints specific to Quebec.

To mobilize the research community and policymakers and to develop a lasting partnership, the QPHRN pursued a gradual approach to building alliances and relationships of trust. It has conducted systematic reviews of foreign experience and expertise in Quebec, developed an analytical framework of past experiences and a guide for assessing existing platforms, prepared a literature review, produced documents and guidelines strategic planning and made presentations in various forums and held a symposium targeting policy makers and researchers with leading Canadian experts.

These activities and reports have mobilized partners and established the credibility of the Network to gather contacts. A working group composed of experts from Quebec and an advisory committee composed of policy makers and managers have been created to support the subsequent steps of the Network for the creation of a consortium operating Longitudinal Administrative Data (CEDAL). These efforts will continue during the next FRSQ funding cycle (2009-2013).

Objectives of the Axis

  1. To continue the development of partnership between the Ministry of Health and Human Services, the regional authorities and the research community.

  2. To continue to drive these issues but with limited budgets for monitoring and maintaining these partnerships, while continuing our efforts to negotiate and advocate for the development of such infrastructure.

Working Group Members

Dr Gilles Paradis
  • Scientific Director, QPHR Network
  • Medical consultant, Institut national de santé publique du Québec
  • Professor, Dept. Epidemiology, biostatistics & Occupational Health, McGill University

Dr Jean-Paul Fortin
Dept. of Social and Preventive Medicine
Laval University
  • Regular Member, Institut Technologies de l'Information et Sociétés
  • Associate Member, Chaire de recherche en médecine d'urgence Université Laval-CHA-Hôtel-Dieu de Lévis

Mme Aline Émond
  • Consultant

Dr Paul Bernard (until his death on February 6th 2011)
Dept. of Sociology
Université de Montréal
  • He was a member of the Conseil national de la statistique, the Réseau stratégique de recherche «Changements démographiques et parcours de vie» parrainé par le CRSH, of the Comité directeur de l’Enquête par panel auprès des ménages canadiens, of the Conseil des gouverneurs du Conseil des académies canadiennes, of the Conseil d’administration de la Société de recherche sociale appliquée and of the Comité de direction du Centre d’études sur la pauvreté et l’exclusion sociale au ministère de l’Emploi et de la Solidarité sociale du Québec.
  • He presided over the Comité consultatif du Conseil canadien de développement social which was mandated to prepare the publication of a periodic report on the social developments in Canada.
  • He was actively involved in the Centre Léa-Roback which was financed by CIHR, whose purpose is to study Social Health Inequalities.

Overview of activities and projects

Information forthcoming

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